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  • Personal Autism Blog

  • Welcome to the personal autism blog at Autism Epicenter. This is a digital online diary (and more) written directly by parents of children with ASD as we deal with the triumphs and challenges of raising children with Autistic Spectrum Disorder. Two people post here, both parents of different families, both dealing with autism.

    With this blog you are gaining access into a whole new world. If you're parenting a child with ASD yourself, then you can relate. If you're not, maybe this will help you gain an understanding of what parents go through. Either way, welcome to our world!

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Comment from: Jenifer [Visitor] Email
I think this is all very exciting but many of the children and young people with disabilities that could benefit from these apps also can't physically manage a small device like an Iphone or owning one puts them at risk of theft. The clunky ole Augmentative Communication device is not something the neighborhood thugs are going to pinch but the temptation changes when it's an Iphone hooked onto the wheelchair or whatever. Also, the controls can be hard to manage for one-handed users. And I have no idea if these work for people who use puff & sip devices. But maybe we can move in those directions.
03/23/10 @ 12:39
Comment from: Shane [Member] Email
You make some good points, Jenifer!

Some of the apps allow for the images to be enlarged to help those with motor skills challenges. But puff & sip devices won't work with them... yet!

As far as theft goes, I think many people (especially the children) are supervised well enough that theft shouldn't be an issue. AND there are also apps that turn iPods/iPhones into alarms, so IF they were grabbed a loud alarm is heard that cannot be turned off by anyone but the owner.

Still, I see your points though. An iPod isn't for everyone.
03/23/10 @ 13:09
Comment from: Red Perry [Visitor]
I have a son with autism and we got a ipod. Its been a lifesaver! Thanks for reviewing some of the apps!
03/30/10 @ 10:13
Comment from: Shane [Member] Email
Note: Apple is not the developer of the apps. And it's the developers who control the price of each individual app. I've noticed they can (and often do) put them on sale for a time or even change the price for a while. So the prices aren't written in stone.

At the time I'm writing this comment M-CHAT is now $1.99, but at the time I wrote the original blog it was $26.99.
04/15/10 @ 10:36
Comment from: Paul [Visitor]
My son is 24, autistic, and non-verbal. He has a Chat-PC communication device that we were able to get a number of years ago. He uses the Chat-PC but does not readily pick it up to communicate.

My wife and I bought an ipod nano so our son could watch his videos. He loves animated videos and cartoons. However, he found the scroll wheel difficult to control since he does have some fine motor problems.

When we saw how well our son was able to interact with the touch screen on my ipod touch we decided to get him one of his own. He now uses the ipod touch to watch his movies and play some basic games.

He uses the ipod touch at home but it is really valuable when we go out somewhere. It gives him something to do almost anywhere we go.

We are now looking into getting one of the communication apps. However, I wonder if he will avoid the communication app and go straight to his videos or games. Has anyone had any experience with individuals using both the communication apps and the entertainment apps?
06/01/10 @ 14:00
Comment from: Shane [Member] Email
Hello Paul - Though my son is only 8 now and verbal (it's like pulling teeth), he loves Need For Speed on our iTouch. But he still asks to see his visual schedule on there too. He's fascinated that when he touches one of the pictures it talks even if it's just my voice saying, "Eat your dinner."
06/01/10 @ 14:33
Great site. Just stumpled upon it. My son is eight and has autism and epilepsy. I write at my own personal blog about our journey, and also write for OCFamily.com at Autism in the OC. Seems you have a wealth of information! Wonderful!
06/09/10 @ 06:44
Comment from: Shane [Member] Email
The strength of our iTouch was recently put to the test. While my 6-year-old nephew was playing a game on it, he dropped it on the concrete... from about 3 feet up. Also, while my son was walking with it, and swinging his arms, it slipped out of his grasp and flew about 6 feet in front of him... on the concrete. But the iTouch is still working fine!

Hi Jo - Thanks for stopping by. You have a nice blog too!
06/11/10 @ 15:30
Comment from: Janine [Visitor] · http://www.goodkarmaapplications.com
@ Paul...

Yes to your question...

What helps if you have one itouch for communication and one for gaming. Use two different colored cases so your son can visually see the difference. My son isn't interested in gaming, but for a friend that son is this did the trick.

Not cheap...but, might save your mind ;0)

I have found the cases from ihome work the best. Speaker control is on the outside and is more durable than the imaingo.(I think that is how it is spelled). You can buy them on Amazon.

@ Shane...thanks again for your wonderful website. You are a wealth of information and a real blessing to the ASD community. Thanks for taking the time to provide these resources to our families!!!!!!!!!!
06/17/10 @ 23:55
I've developed a version of pure picture exchange on an app and am using it with my daughter Grace. I would be very interested to hear from parents using iTouch or iPhone and iPad even; What covers and lanyards are you using.
I am on about my 16th cover and have just returned from Andalusia where my daughter was using what I thought was the "alpha" version of a hard plastic iPhone cover that holds a shoulder strap type lanyard securely - which she flung onto the hard tiled floor in the villa and smashed the screen.
What I need is impact protection AND a secure way of attaching a shoulder lanyard as I like her to wear it.
She had to use our back-up iTouch for the rest of the holiday which had less functionality (no Youtube entertainment as we had no wifi in the villa)
- and a not very protective cover so I was tethering it to me for the whole time - and I feel she lost independence and language.

Grace uses the "Grace App" that I named after her very competently and I want her to have the freedom to independently access and "own" the device.

So- links please if you do have suggestions - I'm looking to buy for both the iTouch and iPhones!

xx
06/18/10 @ 13:10
Comment from: bickp [Member] Email
Just to clarify about the MyTalk set of tools.
MyTalk Mobile is a fully functional AAC device for $40, a device that never needs the web application (subscription component) to continue working as long as you own the device. We chose to provide a very inexpensive, fully functional solution, MyTalk Mobile.

And there's a free version, just to make sure that if your child does not have the fine motor skills to use our app, you don't waste your money on a 'non refundable' App store purchase. Test our solution for free. Purchase only if it works in your situation.

We provide another complimentary web application for customers, MyTalk Workspace. Again, a completely optional service, but a service that we believe will revolutionize AAC because of the features we have built in and will continue to add.

If you opt out of the optional MyTalk Workspace after 30 days, no images are lost. They reside on your handheld device and are fully accessible with MyTalk Mobile.
For details: www.mytalktools.com
For product specifics:
http://www.mytalktools.com/dnn/Products.aspx
07/14/10 @ 20:30
Comment from: Lisa [Visitor]
Thank you so much for this helpful and comprehensive review of current apps. I'm overwhelmed as I try to decide what apps to put on my autistic daughter's new Ipad. If you had no restrictions on cost, but could only have one of each type of app (communication, picture schedule, etc...), what would you choose? My daughter is 16 and I think she's going to love this, but I'm about to shut down from info overload! :)
07/28/10 @ 16:40

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